post Category: Uncategorized — mylifeasannie @ 9:06 am — post Comments (0)

What a sad day yesterday was… the last day of school for this year.  Isabelle will go once a day to school for a couple of hours starting later in June.  It’s funny how much I’ve grown to love the routine of the school year.  The reason it is funny is because I have never liked routine before in my life.  I’ve always enjoyed spontaneity.   The other reason it is a little sad is because Izzy’s school group have become like family.  I look forward to visiting with them daily and really having a team of helpers that love Izzy <almost> as much as I do 🙂 …

Amanda has been home for almost two weeks and it has really been nice to have her around.  She had a busy school year and we didn’t see her much.  Bailey is officially a senior.  I loved Amanda’s comment yesterday when we were talking about this, she said, “where  has the time gone?”  I think he is really looking forward to his senior year, and plans to enjoy drama and is even participating in debate.

Emelia missed her last day of school because she headed south to Dallas with Gram.  They are spending the weekend with Jane Ann and have tons of fun planned for the weekend.  She went to a painting class last night and texted a pic she painted of Bones… pretty cute 🙂 .

Isabelle went to Stillwater earlier in the month to participate in the Special Olympics.  She was so excited to go!  Before it was over it began to rain, really hard!  We drove home soaked, but it was worth it.  She got two silver medals that she was very proud of!  She is showing off her medals with her very special friend.

Another big event in May was our locks of love day at school.  I mentioned to Izzy’s para Brandy that I was planning to cut the 10″ off of Izzy’s hair soon to send to locks of love and she wanted to donate her hair too.  Brandy asked all of the other teachers/paras at school who had long hair and one other joined in donating 12″ of her hair!   I had fun chopping off  all that hair.  I am always sad for about five minutes when I cut Izzy’s because her hair is so long and beautiful but then I remember how fast it grows and what a good cause it is for.

We are still waiting for the call to let us know the new back TLSO is ready.  In the meantime, Izzy has been doing very well at school in her kid walk.  She has been taking some STEPS in it!!! I brought it home yesterday so she will have it for the Summer.  I pray that she continues to initiate steps.  It is obvious she really wants to move because each step really takes so much effort.  It feels so good to end the school year on a positive note with standing and steps and other good things.  Last Summer we ended the school year preparing to take her for hip replacement.  It wasn’t really a decision to have this done, it was necessary because of pain and discomfort… but now, a year later, it is all worth it.  I told Matt his morning I can’t remember much from last Summer.  I remember the surgery day, the hospital days, and the cast, but I can’t remember much else.  He said we must be blocking it out because it wasn’t a great Summer.  I really do like to stay positive and live everyday like it is a good, normal day… love the carpe diem mentality… but, sometimes that’s hard to do.  I think watching your child suffer makes it close to impossible.  BUT, here we are… a year later with fixed hips and all’s well with the world.  I guess I could focus now on the progressing scoliosis problem.  Maybe later… We are starting Summer 2011 with a smile 🙂 !!!

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